Advice about Exhaustion & Fatigue
Parent Q&A
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Chronic Fatigue Syndrome in 15yo
–Jan 17, 2023My 15 year old daughter has had many of the symptoms of CFS for about a year. Joint pain, always exhausted, brain fog, daily dizziness, and night sweats. Kaiser has done many tests and everything is normal. I know CFS (or Lyme) is hard to diagnose or treat. Ugh. Any recommendations for what we should do?
Jan 17, 2023Sudden horrible headaches and exhaustion
–Sep 25, 2021A person who I am in part responsible in caring for (mid 20's) has suddenly developed incapacitating daily, horrible, electric headaches, gets out of breath walking even a block (before this he regularly ran ten or more miles no problem), has trouble concentrating, can barely read a few pages without getting wiped out (as a humanities grad student he normally reads several books a day). He went to the ER where they said he needs to get head MRI and a neurologist--can anyone recommend any particular neurologists (not Kaiser), and if there are other specialists that might be appropriate?
Thank you very much.
Sep 25, 2021PCP who believes CFS/ME is real
–Dec 19, 2019I have Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME) and a host of other related health issues. I am getting great care from a medical doctor who specializes in these disorders, but I need a new PCP for regular health care unrelated to CFS/ME. I’m looking for someone who I can see for preventive care, mammograms, injuries, etc., who will not be dismissive of me because of the CFS/ME diagnosis. I need someone who understands that CFS/ME is a real disease and is willing to be educated about it if not already aware of recent research developments, who will not tell me that everyone is tired, it is stress-related, it is in my head, or try to refer me for mental health care, and who is comfortable with me getting unconventional (but helpful) treatment from my specialist. Anyone in a similar position who loves their PCP? Anyone who just plain loves their PCP and thinks that they’d be open to working with me? Thank you!
Dec 19, 2019Fatigue in peri-menopause? or just fatigue? Help!
–May 22, 2019I am sort of at a loss. I'm almost 44, no idea when my mom went through menopause or what her symptoms were. I have never been a morning person, and always found it hard to get out of bed in the morning or function for the first hour or so. But lately it's gotten WAY worse. It doesn't matter how much sleep I get. how good the sleep is, how much exercise I get, how much sugar I eat... I CANNOT get out of bed in the morning. Even if I've gotten 10 hours of sleep!
Is this peri-menopause? Something else? Any ideas? I take vitamins, I eat healthy, I don't have much caffeine, and I've had my iron tested and I'm fine.
My doctor doesn't know what to do. Has anyone else experienced this??
May 22, 2019Overly sensitive exhausted mom-how to cure it???
–Oct 14, 2017If you had this problem and recognize yourself in my description please comment from your own experience.
I am so tired, do not know what to do. I had always been very sensitive, reacting to everything but over the last few years when I approached mid40s and all hormonal premenopausal changes after a very stressful life it became very bad. It is like constant PMS. Every tiny little negative thing hurts me a lot, way out of proportion to a stressor. It is like if I had no skin emotionally. Every rude word, every even little stress, every sad news I heard on TV, even listening to a sad song can make me cry.
My ability to handle stress has disappeared now. It is one of symptoms of adrenal fatigue syndrome-have all the other symptoms too and cortisol test confirmed. I am exhausted, anxious and depressed all the time.
It is so hard to function like that. I am overreacting all the time. Little things which most people would easily ignore, make me sad for days or weeks. I do my best to avoid negative people and do not listen to sad news on TV if I can.
I work in medical field so it is very stressful and patients LOVE me because of that extra compassion and empathy that I feel their pain and do my best to relieve it. But downside is that I suffer from this, getting sad all the time and those overwhelming emotions interfere with my ability to function.
I am a single mom of a teenager. Have a dog. Tried so far without success: therapy for 6 months each with 2 therapists (CBT and EMDR), meditation, light exercise, healthy food, vitamins, limiting negativity (from TV, newspapers and staying away from negative angry people), herbal calming teas. Helped a little only increasing sleep time and doing less work/going on vacation but finances do not allow to decrease work anymore.
Please how to get this "thick skin"? How to became calm and happy and a little numb to pain? How to care less? Was anyone able to achieve it? I do not want to become heartless or indifferent but I want to stop suffering from every little thing. Were you able to overcome it and to become calm?
Please do not suggest meds, or going to the doctor or taking hormones. Would like to find natural, not chemical solution.
Oct 14, 2017Naturopath recommendation for adrenal fatigue?
–Aug 20, 2017By the time my child was 2.5 I stopped sleeping well--after the first two years of normal wake ups with a baby and for nursing. Now two more years have passed and I still can't get enough sleep. I have been prescribed medications that make me sleep but don't address the underlying cause. Does anyone know of a good Naturopath who can diagnose and treat what I am guessing is adrenal fatigue/HPA Axis dysfunction?
Aug 20, 2017Desperately need help for adrenal fatigue
–May 31, 2017So after many years of stress in a high-pressure job and then having a baby 3 years ago, I feel totally out of whack.
It is like I can't function at all from 9am to around 2pm and this state of disfunction gets me so depressed and low and I feel so helpless. Then, all of a sudden at 4pm the fog lifts and I feel myself again, feel the energy coming back.
And when it is 10pm and time to sleep, Im so wired! I tried melatonin, it doesn't work I feel all jittery in the morning.
I did some saliva tests which confirmed my symptoms spot on. I have significantly lower than the minimum range corsitol in the mornings and then late afternoon onwards it starts to surge and high cortisol levels just before bedtime.
How can I get my rythmn back, would love some recommendations for practitioners (MD preferred) who specialize in adrenal fatigue? I am trying to give up coffee which is so hard and also avoid any processed food/white sugar/flour etc
May 31, 2017
Archived Q&A and Reviews
Feb 2005
I am looking for a primary care physician, preferably female, in or near the Berkeley area. If anyone knows of one who has experience with Chronic Fatigue Syndrome, that would be even better! I am on MediCal/Medicare. Thanks!
[no replies received]
Nov 2004
Does anyone know a specialist that deals with Cronic Fatigue Sydrome? If you know someone near La Morinda that would be the best. What type of doctor or specialist would you recommend? sleepy mommy
There is a wonderful endocrinologist in Lafayette named Rachelle Halpern who has an interesting approach to Chronic Fatigue (I believe she looks at mercury toxicity as a possible cause) and I know she's had great success in treating this disorder. I don't have her phone # here but I'll try to post again once I find it.
i can recommend jeffrey mandel in hayward. but if you do an online search for immunesupport.com you can get their list of ''good docs''...READ all you can about CFS/M.E.--Paul Cheney (in NC)!; Tetelbaum's book & web site, listing practitioners who have taken his workshops. Read the Nightengale book edited by Brian Hyde, Canada--a magnificent collection of research that really legitimises the disease-- Myalgic Encephalopathy. Read ''Running on Empty.'' Get off caffeine & sugar. Some people get results from the Ultra-Clear detox protocol. Pay close attention to MD's who want to give you antidepressants--read Dr Chaney's words on this, especially long-term use. I'd also be wary of any of the ''speeds'' or meds for narcolepsy until you've tried just about everything. Xyrem works for many, but finding a doc willing to prescribe this is not easy. There is a new antidepressant, IXEL or MILNACIPRAM, not available in this country, but can be obtained--designed especially for people wth FM, particularly for pain-again, beware long-term. I've had CFS/M.E. since 86 & my very best response has been from acupuncturist Jenny Crissman. Alternative medicine & therapies work really well for many with CFS/ME/FM. Amsterdam has a fabulous clinic. Read, be super informed, & don't let anyone convince you this is not real. If an MD or any health care practitioner is not willing to be creative, then find someone else immediately. Kaiser's care for people with CFS is HORRIBLE; I can tell you horror stories of scary, could-have-killed-me-if-i'd-not- known a lot (last KP care 2001.) Dr Goldstein, LA area, is well-known in the field...find a support group; subscribe to the CFS newletter from national cfs care--they are extraordinarily reliable & THE BEST SOURCE OF CARE & INFO!!!! http: // www.cfids.org/...if U R newly diagnosed, be sure you are practicing ''aggressive rest therapy.'' it's a complicated, complex, & frustrating process finding help & therapy...many treatments seem to work for a while, then stop....be sure you are adequately tested & treated for thyroid.....check out piracetam for cognitive function--it's helped me and many others--you may have to get it compounded....be aware of Multiple Chemical Sensitivities oonagh
So sorry to hear about your daughter! We have been struggling with the same thing. It started with dizziness/POTS and brain fog for my 15-year-old daughter; then she got the flu and since then she has had daily headache/migraine and chronic fatigue and brain fog. It's been over 18 months now. She has a diagnosis of post-viral syndrome because she had mono before this all started. You have to see specialists because primary care wants to simplify it to only anxiety/depression. We have been waiting for a year to get into the Center for Complex Diseases in Palo Alto which focuses on CFS. If you think its Lyme, I suggest Dr. Sunja Schweig. Is your daughter able to go to school? My daughter had to pull out of high school for a semester which was very difficult because she is ambitious. She's back in again this year, but has just had a CFS "crash" and has missed 1 week of school and this week isn't looking good either. I'd love to connect with anyone else going through this to share info/ideas.
I had low-level chronic fatigue for several years for what turned out to be a low-level infection caused by a cracked tooth. My dentist mentioned fixing it, but since it wasn't causing pain, I let it go. As it turned out, the crack was allowing bacteria to enter my system, causing the infection and fatigue. Once the tooth was fixed and I had a round of antibiotics, my energy was back. Thus, my advice is also check with the dentist for any possible sources of bacteria/infection.
Sorry you and your daughter are going through this. There is always an underlying reason for CFS. Allopathic medicine is not great at finding the underlying cause. Naturopathic/Integrative medicine focuses on identifying root causes.
I’m not a doctor, but the symptoms that you mention could be the result of hormonal imbalances and hormonal imbalance could be caused by many things, Lyme as you mentioned, but also toxic exposure like mold, mycotoxins, heavy metals. The DUTCH test is s dried urine test that tests hormone levels and adrenal function. Tests can also be run to look at heavy metal and mycotoxin burden. A naturopathic doctor is out of pocket and can get expensive, but they have a tool kit that can address the issues you mention. Think about what happened before her symptoms started. Did she have Covid, Mono or another virus? Did she start or stop any medications? Did you make any changes to your house such as new furniture, mattress or construction? Review what personal care products are used and changes to diet. A doctor looking for the root cause will ask these types of questions. I do not have personal experience with the following doctors, but I know they work on complex chronic illness, Dr. Elizabeth Korza in Piedmont and Gordon Medical Associates in San Rafael. Good Luck and hang in there!
I'm so sorry that your daughter is suffering. Kaiser is not at all good at handling CFS. I suggest asking them to test her for Postural Orthostatic Intolerance (POTS). There are treatments that Kaiser should be able to offer if she does have POTS that will help with the dizziness, temperature regulation issues, and sometimes brain fog. Also check out the organization Solve ME/CFS Initiative. They have a fact sheet on CFS in adolescents that might be helpful to you and your daughter's Kaiser doc. The website cfsselfhelp.org has some helpful tips about how your daughter can manage her limited energy.
I also recommend trying to get in to the Center for Complex Diseases in Mountain View. I have heard there is a very long waitlist, but the doctors there are very familiar with these symptoms, they know what to look for and test for, and, most importantly, they can offer some treatments that can make a huge difference. They don't take any insurance, so it is all out of pocket and very expensive, and it can be hard to talk Kaiser into covering the medications, but if you can swing it, please do try. They have made a world of difference for me in my long CFS journey. Good luck, and I am wishing your daughter the best.
I'm so sorry that your daughter--and your family--are going through this. Dr. Todd Maderis, at Marin Natural Medicine (in Larkspur, but phone and video appointments are regularly used), could be the right person to help. He treats patients holistically and has deep knowledge of and access to tests that a Kaiser physician, for example, wouldn't. He definitely provides individualized medicine. I've worked with him for years for a variety of complicated health challenges that traditional/western doctors either dismissed (with the "bubble" over their head silently telling me I was crazy as the traditional blood tests found nothing wrong) or wanted to treat me with antidepressants. Dr. Maderis also successfully treated a very dear friend and both her daughter and step-daughter (as teenagers) for very bad cases of Lyme and other complicated illnesses. I recommend him without reservation. Best of luck and may your daughter be on the road to feeling healthier very soon.
I'm so sorry for your daughter.... it's really challenging to be dealing with something like this at her age. My teenage daughter had similar symptoms and after a lot of tests and doctor visits, she was finally diagnosed with POTS. She was definitely dismissed by a few doctors, but it was clear to us that something was wrong. If you suspect it could be POTS, you could Google "poor man's tilt table test" and follow instructions to see how positional changes affect her hear rate. If it's concerning, I would ask Kaiser to perform a tilt table test and/or refer her to Stanford's Autonomic Disorders program.
So sorry to hear your daughter is struggling with these issues. Has she been checked for Multiple Sclerosis? If not, I would push for an MRI to see since the symptoms have been going on for so long. MS is not something that can be done through a blood test). It is not common for people under 20 to get MS but it does happen (I know a couple of people). (I'm 54 and have had it for 21 years). All but night sweats are some of the most common symptoms of MS. Please feel free to get my info from the moderator if you want to get in touch. Good luck.
This is how I felt when I had severe iron-deficiency anemia. It went undiagnosed for years! I had celiac disease, and they checked me for everything else and amended all of my other deficiencies, but they relied on my hemoglobin score to check for iron-deficiency, which is only 25% sensitive for iron-deficiency, instead of a ferritin test. I'm still so mad thinking about it. So, make sure that you do a ferritin test for anemia. I will say that celiac disease can make you feel like this too. I didn't have any gastrointestinal symptoms so nobody ever thought I had celiac disease, so don't dismiss that as a potential diagnosis either.
Dear Mom,
Your daughter is so fortunate to have you as her parent. (As a parent, I know it's tough for us both when our kid --even if full grown -- has a health challenge that no one can get to the bottom of). I wasted a lot of $ trying to find out about the various aspects of my autoimmunity challenges --Chronic Fatigue being one of them--Note: My mom was from a very different world/generation & she did all she could but didn't know how to search for answers. I work with Dr. Akil Palanisamy, graduate of Harvard Medical School, who is now located in Sacramento and currently NOT accepting new patients. (He/the Sutter system-- takes my Blue Cross/Blue Shield ..& most other insurances, including Medicare...but probably not Kaiser) Why not call his office and ask if he knows of someone here in bay area. (916) 887-4660 He practiced in Marin local for a long time before moving to Sacramento. Also, you might find -- I got a gluten-intolerance test because of Eileen Laird and it showed I was celiac. Eliminating gluten certainly helps me. https://www.phoenixhelix.com/media/ --- All the best.