IEP/504 for Dyslexia

More advice about: Dyslexia ...IEPs

Parent Q&A

OUSD is reluctant to do IEP for 2nd grader with Dyslexia Feb 24, 2020 (4 responses below)
IEP for 9yo son diagnosed with Dyslexia and ADD WCCUSD Feb 10, 2020 (5 responses below)
  • My daughter is in 2nd grade at an OUSD school. She was just diagnosed with Dyslexia/Dysgraphia after private testing. The school is reluctant to do an IEP.

    She is currently reading at grade level but has a hard time spelling and writing. We started tutoring over a year ago when she was struggling at the beginning of 1st grade. She meets with the tutor 1x a week because  of time and $$$ its been hard to do more sessions.

    1. I am curious about other OUSD families dealing with Dyslexia and what type of support is possible...

    2. I'm curious about tutoring and camp options. My goal is to make sure she still gets to do some of the activities and camps she enjoys in the summer so the 5 week 1/2 day camps don't really work.

    thanks!!!

    There are many Facebook groups that can be a great resource. Also understand.org...

    look up decoding dyslexics ca and many other groups. 
    Sorry to tell you that this will be a lifelong battle with the schools. It’s unfortunate but they don’t acknowledge dyslexia...

    you have to constantly keep after them. Never give up.

    bezt Tammy  

    The school legally has to do an IEP when you notify them in writing - it is federal law. Scholl districts typically resist because it costs them so much money to do the testing. My daughter did the testing in Sept at BUSD after the administration resisted it. Of course the results confirmed what we thought. She has a learning deficit (difference). It was great to have a 17 page report on how her brain works! Everyone is different. Requesting the testing now is important because you'll want to insure that accommodations are in place to insure your student's success for the next 10+ years ahead of school. The school district is under no obligation to use the results of an outside/private testing service. They have to do their OWN test and follow the results of their own test by law. The student is taken out of class for the series of tests (usually over a 3+ day period). Push hard and you will get what you need for your student, as you are your student's most important ally.

    My kids are older but are both dyslexic and both are/were OUSD students. Feel free to reach out via my username if you want to talk. 

  • Last Friday we got a diagnosis that our son has dyslexia and ADD. I suspected in 1st grade that he had both and I was right! We went to a licensed neuro psychologist and had a full evaluation done. Now our challenge is figuring out what to do about school next year. We are in WCCUSD and my son is in 3rd grade. I have requested an IEP since we have diagnosis for two disabilities that are covered under IDEA, but I wanted to know what the experience is like for others who have children with diagnosed disabilities in WCCUSD. I have been told that even if the child has advanced grades and isn't that behind, by law, the school is required to accommodate him since he has two diagnosed disabilities that are covered under IDEA. We have also applied to two private schools, but I was told that they can discriminate against children with disabilities because they often don't have the resources to support them. So parents:

    1) What was your experience like getting an IEP?

    2) Did the IEP address all the suggested recommendations for accommodations?

    3) Did the IEP address multi-sensory education recommended for children with dyslexia?

    4) Did the district reimburse you for any tutoring with an education specialist?

    5) Do you have opinions on private versus public school for children with disabilities? We don't have unlimited funds and would most likely be unable to afford private school tuition without financial aid. 

    6) Are they any support groups for parents with children with ADD and dyslexia? This diagnosis has hit us like a brick and I'd love to be part of a supportive community than can provide guidance. 

    Thanks all. 

    Hi there.  My kid has had 3 assessments and 2 IEPs through WWCUSD. That's a lot of questions.  Please PM me and we can talk.  

    Hi there! My son got the same diagnosis a little earlier. We are in BUSD, so can't give you guidance in your district, but I can say that we followed the advice from DREDF (https://dredf.org) and got an IEP meeting right away. The IEP itself was not the greatest (i think they never are) - I find that our school district "experts) have total lack of training in both ADD and dyslexia. But what really helped was:

    1) Contacting DREDF

    2) Getting a private, outside educational therapist (you can ping me to get the info for the one we use - it is kind of hard to find one). This therapist can help your kid w/ literacy, executive functioning, and self advocacy. This is really the best thing we ever did. Our son has seen her for 2-3 times a school week for years. 100% worth it!

    3) Retroactively asking the school district to reimburse us (with a lawyer's help)

    Unless your child is really severely dyslexic, I think the therapeutic schools (like Raskob) may not be a fit. Lots of people suggested Charles Armstrong but it's so far away and super expensive, so we didn't even consider it. 

    I attended one meeting of Decoding Dyslexia and it depressed me -- there were only a few parents and as I remember they were all homeschooling (not an option for me). 

    CHADD https://chadd.org is a good organization for ADD. Sometimes there are good lectures at Holy Names - It's really important to look at research rather than other people's opinions about your kid's LD - staying informed is great! Feel free to ping me.

    FYI, it hasn't always been easy but my son is now 12 and in 7th grade and reads at grade level and has excellent reading comprehension skills! ADHD has proven to be more of a liability in school but this year, he's showing a lot of maturity and making friends and communicating well and even starting a club at (public) school. 

    It helps to put a request for an IEP in writing because it will let the district know that you are aware of your child's rights.  I would read Wright's Law website and use one of their sample letters for requesting the meeting.  Be prepared to fight for services for dyslexia if your son is at or above grade level.  School districts often deny services for children who are not showing academic weaknesses compared to their classmates.   It's possible that things will go smoothly but If you have difficulty getting a response from the school district you might want to hire an advocate to assist with the process.  Some school districts provide services for private school students but most do not.  Increasingly, private schools are employing learning specialists to help students with disabilities.  I hope this helps.