Seeking Excellent Cardiologist ASAP

I am a single parent, female, in my 50's, who saw a cardiologist at Berkeley Cardiovascular Group a year ago regarding arrhythmias, occasional chest pain, and shortness of breath. I had an Echocardiogram and was given a Holter monitor to wear for two weeks. I didn't hear from the cardiologist following the tests so presumed everything was ok. A few weeks ago, (almost a year later), I took my blood pressure and it was 215/110. I walked to Alta Bates ER and was sent home later that day when it was 179/90. I called the cardiologist, who did not remember me, took a good bit of time to find my records, and then told me I had "thickening of the heart walls" and needed to come in. He would not answer questions on the phone. When I saw him, a few weeks ago, he said I did not have Hypertrophic Cardiomyopathy which is what "thickening of heart walls " translated into in an online search, but that I had "Left Ventricular Hypertrophy." He made light of both the condition and the arrhythmias, saying they were both "common" and that everyone had arrhythmias. I can't read the echocardiogram results myself, and nor do I feel confident in this doctor and so I'm looking for a new cardiologist. The family history is not good: My father, fit, slim, and otherwise healthy had his first heart attack at 30, then a pacemaker, later an aortic aneurysm in his 50s, and heart attack that killed him at 70yo. A brother had heart surgery (a device placed in Left Femoral Artery for 90% blockage) at 40yo, and my sister died in her 40's of a pulmonary embolism. I have read a bit, and am now wondering if my father might have had Hypertrophic Cardiomyopathy and thus perhaps I might. It may be difficult to get his records in Europe but I have written. I'm wondering where to start. Cardiology Genetics? Or a cardiologist with a specialty? Should I go to UCSF or Stanford? I will travel. I would like to reverse the LVH if it is possible but I understand if I have cardiomyopathy it will not be possible. I have not taken any medications my entire life except the odd antibiotic dose and now feel I have to take the Losartan prescribed to lower blood pressure. I'm hoping that there are others on BPN who have been on this path themselves or with a loved one, and if so, might be able to offer suggestions, and especially names of top cardiologists/specialists/ cardio geneticists (with or without a wholistic/alternative bent but I lean towards latest research/treatments and alternative/holistic medicine) who are at least at the top of their field, are highly recommended and current with the latest treatments. I want to be here for my kids as long as possible. Thank you!

Parent Replies

New responses are no longer being accepted.

Hi Aisling, I'm so sorry you have had trouble finding care you trust.  My brother was sent by his general cardiologist (an Army doctor) to Matthew Wheeler at Stanford to diagnose a genetic left ventricular (non-compaction) cardiomyopathy.   He found him and the center there to be very competent and knowledgeable and I believe they specialize in genetic conditions like these.  If Stanford cannot see you, perhaps they can recommend another general cardiologist you can see first.  Best of luck to you!