Experience with craniosynostosis?
Our eight month old has been recently diagnosed with unilateral coronal craniosynostosis. His head and face were always a bit asymmetric, but it became clear that he wasn't growing out of it - in fact it was getting more noticeable. We're working with Dr Sun (neurosurgery) and Dr Pomerantz (plastic surgery) at UCSF Children's Hospital, and have been happy with our experience there so far, but just to cover our bases we're scheduling a second opinion appointment at Stanford. We're probably looking at surgery in the next few months, since Dr Pomerantz prefers to operate somewhere around the child's first birthday. In the meantime, we'd love to connect with other families who've also dealt with or are currently dealing with craniosynostosis!