Communicating with friends and teachers about son's Tourette's
The most recent posts I came across regarding Tourette Syndrome are from five years ago, and don't address the following question -- how and when to educate my 8 year old son's teacher/school community/friends and their parents about TS?
Context: my son has a number of motor (blinking, mouth stretching, some should shrugging, arm extending), and aural tics (clearing his throat, clicks jaw) . Most are pretty subtle; in fact if you ask people they would say they haven't noticed anything, or might mention his blinking or his throat clearing but not realize those are tics. So, at this point, his tics are not impacting his public life. However, they are becoming more noticeable/frequent, and he has asked me about them, wanting to know if they'll ever go away, and very anxious that he will be made fun of. I've worked with a pediatric psychologist at Children's Hospital, who diagnosed him and has helped me talk with him about it. She has given me suggestions about how it might be addressed at school including 1:1 with teacher, via a workshop on diversity that included TS among other topics, etc. When I volunteer in his classroom I rarely see any of it, and when I've asked his teacher she said what most say (that he blinks a lot, so she figures it is a nervous habit). I let her know he has tics and that emotional and physical excitement including anxiety can trigger them but he can't help it. I gave her examples and said I'd be happy to talk to her more about it. I did not get into the diagnosis or try to educate her. Yet.
Other parents I'm close to I've told. But with parents of his other friends ... I have been hesitant to draw attention to him if it's not even noticeable (kind of like breaking his confidentiality?). On the other hand, if they are noticing something and just not saying anything/wondering I'd rather there be clarity.
Have you had experiences communicating with your child, his/her friends or teachers about TS? The internet is full of advice regarding kids with very prominent tics, which feels like it requires a different approach than this. Suggestions? Thanks!