ALS diagnosis -- support, advice needed
A neurologist has just diagnosed me with ALS, pending confirmation from an ALS specialist. But I fear it is all but certain. Unfortunately, my husband has been struggling with debilitating depression for some years and it is pretty bleak for him already right now, I don't know If he has the strength to take charge I have not told anyone yet, not even him (although he knows about all the doctor visits and tests I have had, I am waiting until the end of the week when I see the specialist). One daughter is working on her college applications right now, I am pushing her to get them done soon, before we start planning how we will handle this devastating development. Our older daughter lives and works in the area, but stays with her boyfriend because of the pandemic risk to us as older parents. I am going to need a lot of help to get things organized and figure out how to get the care my family and I need. Open enrollment through my husband's university is soon, and I may want to change plans. We also need to organize our finances, create an estate plan, make financial and end of life decisions, etc. I am looking or any advice or recommendations anyone can offer: who can advise us on the health insurance decision? review finances with us and educate our daughters so they will be able to handle household finances as needed? help find caregivers as needed? This is all so much harder to contemplate trying to manage during this damned pandemic. I'd love to hear of any local support groups -- I found some on Facebook but that is a little too public at this point. Thank you for sharing any wisdom and experiences you may have to get me started on this unwelcome path.