We are in the process of finding out if my teenage son has Wilson's Disease. Does anyone out there have a child with (or do you have) WD? We're kind of freaking out over here. Would love resources, recs for doctors, etc. We are already working with a great neurologist. Thanks so much.
I have Wilson's Disease. I found out when I was 32 (very late). By then my liver was all but gone, and since then I had two liver transplants two years apart. Right now I am healthy and happy, 44 year old, and had a baby two and a half years ago. I am happy to connect and answer any of your questions!